Still no severe seizures! I say “severe” because I get the occasional hard twitches, tremors, or even a full body twist. And I have had some evenings where it’s like a seizure has taken over – I can’t respond or move, etc – but instead of a full-on dystonic seizure, I only have the occasional hard twist or spasm until I come out of it minutes later. It’s still painful but nothing at all compared to what I’ve been going through these past few years.
Yesterday, we went grocery shopping and I was able to make the full rounds in the store without my walker or a wheelchair! I used my cane to get in, then walked behind the shopping cart. Mind you, this was a relatively small store, but I couldn’t do this before! There was a moment near the meat department where this bell rang loudly, as it always does whenever we’re in that area. Normally, I go completely out like a feinting goat, and since I would be in the store wheelchair, I’d just slump over, unable to move for a while. Well, this time, my eyes rolled back a bit and my knees got weak. I stumbled but held onto the cart hard and caught myself. After a few moments, the feeling of nearly going out passed and I was able to move on, a little shaky in the knees but okay.
So this is great! I’m definitely making progress. I made an appointment to see my medical doctor in a few weeks. There are some meds I take that were to help with this or that in trying to see what might take. With the Vistaril working so well, I wonder how much of these others are actually necessary. Perhaps I’ll feel less dopey with a few less pills in me. Some are muscle relaxers and painkillers, but with less seizures, I can probably lay off of those a little, as well.
I’m also trying to work on my writing schedule more. I still don’t have the concentration to write every day, but when I feel like I can, I’ve tried designating days for certain projects. Most of the week is for Fear the Woods, but I think Fridays will be for new stuff. I’m trying to work on this new post-apocalyptic story I’ve had in mind for a few years now. It’s haunting me a lot so I need to get it written. In honor of someone who has supported Robin and me for a long time now, I thought I’d name the hero Caleb J. Hughes. I can give him the person’s full name, if preferred. I was unsure of how comfortable he’d feel
It’s hard to say how long it will take me to write it because, concentration-wise, I’m far from 100%, but I’m working on it! Plus, I don’t want to neglect Fear the Woods. That’s my baby.